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1-2 October 2021
Our host organiser(s):
...and scene! 300+ registrations, 32 countries, 19 time zones.
🙏 A heartfelt thank you to all our speakers, moderators, authors and ...time-zone defying attendees!!
Despite the constraints and challenges, this 13th European Conference was successfully organised both with fierce dedication and...love, to quote our board members' opening message.
You will find on this page the fruits of collaborative endeavours; session recordings with downloadable material, ePosters and a compilation of 38 excellent abstracts.
Enjoy the tour and we hope to see you in Lausanne next year! (9-11 June 2022)
We have compiled all the information related to this meeting in the following file:
View onlineAwards
Upon completion of the final oral presentation & poster rounds on the last day of the conference, attendees e-voted live for "Best of" on both categories.
The Professor Mary Robertson Award 2023 was presented by Mary Robertson herself with the long-standing support of Tourettes Action UK.
Congratulations, keep calm and research on!
Professor Mary Robertson Award for Research Contribution 2023
Jade-Jocelyne Zouki
Mapping a Network for Tics in Tourette Syndrome Using Causal Lesions and Structural Alterations
Best oral presentation
1st prize
Annet Heijerman
Effectiveness of Tackle your Tics, a brief, intensive group-based exposure therapy programme for children with tic disorders
2nd prize
Tamara Pringsheim
Symptom trajectories in functional tic-like behaviours:
A prospective longitudinal cohort study
A prospective longitudinal cohort study
3rd prize
Yasamin Mahjoub
Randomized controlled trial of supplementary motor area transcranial direct current stimulation in Tourette syndrome
Best poster presentation
1st prize
Coralie Beaulieu & Méliza Gagnon
Microaggressions Experienced by Emerging Adults (16-25 years old) with Tourette Syndrome
2nd prize
Kaja Andersen
Clarifying the differences between patients with Organic Tics and Functional Tic-Like Behaviours
3rd prize
Diana Beljaars
Science-society rifts on tics, compulsions, and Tourette’s:
Perspectives of a panel of Tourettic persons and Tourette’s researchers
Perspectives of a panel of Tourettic persons and Tourette’s researchers
ePosters
You will find below a digital version of the posters that were presented during the poster rounds; Thursday 8 & Friday 9 June. (titles sorted in alphabetical order)
Click on "more info" to view the original abstract and any additional elements, –such as audio, videos, articles and links–, that each author has shared with us.
The headphones 🎧 icon indicates that a podcast presentation is available.
scroll inside this tab ↓
An exploration of attention deficit hyperactivity disorder in young people presenting with functional tic-like behaviours.
Pronin Savva
view more info
Brain morphological changes in patients with Tourette syndrome: a voxel- and surface-based morphometry multi-site stud
Schmitt Simon
view more info
Changes in Tic suppression ability and urge intensity over a 10-week Habit Reversal Training in Patients with Tourette syndrome.
Eberhard Antonia-Leonie
view more info
Characterising young people with functional tic-like behaviours (FTLB) in the context of functional symptoms (FS): preliminary data analysis
Frankland Miles
view more info
Clarifying the Differences between Patients with Organic Tics and Functional Tic-like Behaviors
Andersen Kaja
view more info
Clinician network as a strategy for building and maintaining competence on Tourette Syndrome and Habit Reversal Training in the specialist health services
Pedersen Kari Anne
view more info
Correlation of comorbidities and variability of tics in children with Tourette syndrome and chronic tic disorder
Andersen Kaja
view more info
Design of a Phase 3 Maintenance-of-Effect Trial of Ecopipam in Tourette Syndrome
Atkinson Sarah
view more info
Development in pharmacological treatment of children with chronic tic disorders during the last two decades in Denmark
Skov Liselotte
view more info
Different autoantibody concentrations in serum and CSF in Gilles de la Tourette syndrome
Sühs Kurt-Wolfram
view more info
Differential diagnosis of autism-spectrum-disorder (ASD) in adults
Alvarez-Fischer Daniel
view more info
Efficacy, Safety, and Tolerability of Ecopipam in Tourette Syndrome with Psychiatric Comorbidities
Atkinson Sarah
view more info
Evaluation of diagnostic instruments for Autism-spectrum-disorder (ASD) in adults
Alvarez-Fischer Daniel
view more info
Experiences of self-identification, diagnosis and support for adults seeking a late diagnosis of tic disorders in the United Kingdom
Phoenix-Kane Danni
view more info
Exploring Clinical Pathways for Tics and Tourette Syndrome Perspectives from Healthcare Professionals and Patients
Johanna Marie Luise Fijn van Draat
view more info
Free or not free? – this is the question. Control over tics and free will in patients with Gilles de la Tourette syndrome
Szejko Natalia
view more info
Functional Motor Disorders in pediatrics: clinical motor correlates and neuropsychiatric profiles
Baglioni Valentina
view more info
Functional Tic-like behaviours: A Comparison with Tourette syndrome and Functional Symptoms in Children and Adolescents
Smith Abbie
view more info
Identifying Autism Spectrum Disorder (ASD) in Young People Presenting with Functional Tic-Like Behaviours
Duncan Morvwen
view more info
Influence of persisting primitive reflexes on the expression or triggering of tic disorders or Tourette
Meyers Ralph
view more info
Lessons learned from randomized-controlled studies in patients with Tourette syndrome and chronic tic disorders
Klages Carolin
view more info
Letting Tourette's be: The importance of understanding lived experience in research and the clinic
Beljaars Diana
view more info
Literature review and clinical perspective in the management of functional tic-like behaviours within a tertiary children’s hospital in England
Damodaran Laavanya
view more info
Managing functional tic like behaviours: the development of an advice sheet for use in schools
Owen Tamsin
view more info
Microaggressions Experienced by Emerging Adults (16-25years old) with Tourette Syndrome
Beaulieu Coralie, Gagnon Méliza
view more info
Non-just-right experiences are more closely related to OCD than tics in Tourette patients
Cramer Catharina
view more info
Placebo Effect in Randomized Clinical Trials of Patients with Tic Disorders–Results of Systematic Review and Meta-analysis
Szejko Natalia
view more info
Premonitory urge and tic severity, comorbidities, and quality of life in chronic tic disorders
Szejko Natalia
view more info
Promising results on a clinical trial to explore the safety and efficacy of Sepranolone in pediatric and adult patients with Tourette syndrome
Biernat Heidi
view more info
Proposed Cut-off Values for the Multidimensional Anxiety Scale for Children (MASC-2), Children’s Depression Inventory (CDI-2) and Conners 3 Parent Assessment Report (Conners 3) in Children with Tic Disorders
Szejko Natalia
view more info
Science-society rifts on tics, compulsions, and Tourette’s: Perspectives of a panel of Tourettic persons and Tourette’s researchers
Beljaars Diana
view more info
Somatosensory temporal discrimination in adolescents with Tourette Syndrome: a pilot study
Baglioni Valentina
view more info
Surveillance study of a UK cohort of adolescents presenting with functional tic-like behaviours (FTLB)
Ducroizet Alexandra
view more info
The Calgary and Paris (CAP) Adult Tic Registry: Project description and initial analyses of sex differences in tic phenomenology
Nilles Christelle
view more info
The Tourette OCD Alberta Network: Development of an Educational Outreach Program for Schools
Fletcher Julian
view more info
The Tourette OCD Alberta Network: Development of an Online Parental Peer Discussion Group
Fletcher Julian
view more info
The retrospective analysis of outcomes of pediatric patients with functional tic-like behaviors – What lessons have we learnt?
Tomczak Kinga
view more info
“For the love of God just refer me” - A coproduced qualitative project into the struggles of accessing healthcare services for those living with Tourette Syndrome in the UK
Babbage Camilla
view more info
Book of abstracts
A record-breaking –57!– number of abstracts, were presented in Brussels, 30% of which were submitted from researchers outside Europe.
From Calgary to Melbourne...
Australia, Canada, Denmark, France, Germany, Israel, Italy, Netherlands, Norway, Poland, Portugal, UK, USA.
Thank you all for your contribution and for keeping the collaborative spirit in top shape! 🚀
Speakers' slides
Courtesy of our speakers to conference attendees and ESSTS members; we made available upon request and for a limited period of time (until 1st November 2023) the PDFs of their presentations.
A special thank you to all those who shared their valuable work with the community!
NEW!
Past this date, active ESSTS members will have the opportunity to access the files below from their respective member area once logged in.
Clinical guidelines
European clinical guidelines for Tourette syndrome and other tic disorders – version 2.0. Part II: psychological interventions
ESSTS collaborators
Digital tools
Development of a Self-help Digital Intervention for Young People with TS
Camila Babbage
Media guidelines
Guidelines for engaging with the media as a person with Tourette Syndrome (multilingual)
Seonaid Anderson
Poster
There is nothing Tourettic about the New York City subways” - representation of tics and Tourette syndrome in literature, cinema, and theatre
Natalia Szejko
Poster
CANNA-TICS Efficacy and Safety of Nabiximols in the Treatment of Adults with Chronic Tic Disorders
Kirsten R. Müller Vahl
Research paper
Stop that! It’s not Tourette’s but a new type of mass sociogenic illness
Kirsten R. Müller Vahl
I attended the Brussels conference, may I receive a copy of the slides?
Thank you for filling out the form below. We will send you the requested file(s) upon verification of the submitted information.
NOTE
If you are an active ESSTS member, –for the current calendar year–, please log in and the files will be become automatically accessible. You might have to refresh your browser after logging in. ;)
New feature, the "T-playlist!"
A new feature was introduced in Brussels; audio presentations of the conference posters recorded by the authors themselves and made available in a podcast format.
click!
📸 A photo journey immortalising the Brussels "on stage and backstage" experience!
(We did our best to collect as many photos as possible. Feel free to get in touch, if you'd like to...contribute to the collection!)
Programme
click to view PDF version
scroll inside this tab ↓
I. Conference
Wednesday, 7 June 2023
Workshop;
Behavioural therapy for tic disorders
Behavioural therapy for tic disorders
13.00-15.00 (parallel session)
Workshop in English for participants with basic training
Trainers:
view programme
also available as an independent event
Workshop;
Behavioural therapy for tic disorders
Behavioural therapy for tic disorders
13.00-17.00 (parallel session)
Workshop in French for participants with basic training
Trainers:
view programme
Workshop;
Behavioural therapy for tic disorders
Behavioural therapy for tic disorders
13.00-17.00 (parallel session)
Workshop in Dutch for participants with basic training
Trainers:
view programme
also available as an independent event
Workshops; Behavioural therapy for tic disorders
15.00-17.00 (parallel session)
Workshop in English for advanced participants.
Focus on ASD & functional tics
Focus on ASD & functional tics
Trainers:
Rebecca Akello
Joining us remotely via Zoom from Kampala, Uganda!
Clinical Psychologist, Kampala Capital City Authority Inclusive Educational Assessment and Resource Center, Uganda
view programme
13.00-17.00 (parallel session)
Patient associations meeting organised by Tics and Tourette Across the Globe (TTAG)
view programme
also available as an independent event
18.00-19.00 (onwards!)
Opening ceremony
I. Keynote lecture:
Picking, pulling, and pinching: the role of habit and harm in TS
Picking, pulling, and pinching: the role of habit and harm in TS
Speaker:
Carol Mathews
II. Mary Robertson Award; winner & oral presentation
Awarded by surprise guest...🤫
III. Open-air apéritif at the AfricaMuseum terrace stage; getting together again!
Thursday, 8 June 2023
Pack your running shoes!
07.00
Morning run tradition continues!
More info by our Chief Track & Field Officer: Nanette Mol Debes
*Weather & participation permitting, we shall repeat the run on Friday 9 June.
09.00-09.15
Welcome message by our host & local organisers
Genetics & imaging session
moderated by Kirsten Müller-Vahl
10.00-10.30
Enhancing neuroimaging genetics through meta-analysis for Tourette syndrome (ENIGMA-TS)
Speaker:
10.30-11.00
Discussion
11.00-11.30
Coffee break
12.30-13.30
Lunch break
12.30-13.30 (auditorium)
ENIGMA-TS meeting
(Enhancing neuroimaging genetics through meta-analysis for Tourette syndrome )
13.30-14.00
General assembly meeting
+ Board elections 2023: e-voting begins!
ASD session
moderated by Tara Murphy
14.00-14.45
Autism - past, present and future
The evolving understanding of autism;
focusing on the neurodiversity perspective and thinking through the implications for the sorts of treatments & support that should be offered.
focusing on the neurodiversity perspective and thinking through the implications for the sorts of treatments & support that should be offered.
Speaker:
15.15-15.45
Coffee break
16.30-18.00
Oral presentations of submitted abstracts, session I
moderated by Natalia Szejko
view programme
optional event
From 20.00
Social event-dinner at the Africa Palace
(adjacent to the congress centre & the AfricaMuseum)
From 18.00-20.00
AfricaMuseum private access
We have reserved the museum for an additional 2 hours after its closing time.
Attendees who register for the social event above, will receive a complimentary ticket to visit the museum during the late opening slot.
Attendees who register for the social event above, will receive a complimentary ticket to visit the museum during the late opening slot.
⚠️ Kindly note that we shall not be able to accommodate last-minute dinner registrations; if you wish to attend our social event, thank you for registering by 31 May, at the latest.
Friday, 9 June 2023
09.00-09.15
Welcome address by TTAG (Tics and Tourette Across the Globe)
10.30-11.00
Coffee break
11.00-12.30
Oral presentations of submitted abstracts, session II
moderated by Andreas Hartmann
view programme
12.30-13.30
Lunch break
13.30-14.15
Investigating the effects of median nerve stimulation on Tourette syndrome: clinical trial results
Speaker:
moderated by Andrea Cavanna
15.00-15.30
Coffee break
16.30-17.00
Closing ceremony
Best poster & best oral presentation awards
New ESSTS Board; election results
ESSTS Conference 2024 announcement
Awards
Upon completion of the final oral presentation & poster rounds on the last day of the conference, attendees e-voted live for "Best of" on both categories.
The Professor Mary Robertson Award 2022 was presented by Jeremy Stern, Honorary Medical Director for Tourette's Action UK.
Congratulations, keep calm and research on!
Professor Mary Robertson Award for Research Contribution 2022
Simon Morand-Beaulieu
Increased alpha-band connectivity during tic suppression in children with Tourette syndrome revealed by source electroencephalography analyses
Best oral presentation
1st prize
Per Andrén
Online Exposure and Response Prevention for Children and Adolescents with Tourette Syndrome: A Randomized Controlled Trial
2nd prize
Christelle Nilles
Speech and language disorders and complex vocal tics affecting speech fluency in people with Tourette syndrome
3rd prize
Julian Fletcher
The Tourette OCD Alberta Network: Development of a Continuing Professional Development Program for Community Based Mental Health Therapists
Best poster presentation
1st prize
Carolin Fremer
Mass social media-induced illness presenting with Tourette-like behavior impact of unconscious intrapsychic conflicts, structural deficits, and maintaining factors
2nd prize
Ekaterina Ivanova
Therapist-guided exposure and response prevention treatment for adults with TS/CTD delivered via internet: a pilot trial
Gesine Sallandt
Automated tic detection: Machine learning approach for the detection of Tics in videos
3rd prize
Joanna Loayza
Further characterisation of the rat model of Tourette-related striatal disinhibition: in vivo electrophysiological and behavioural studies
Kari Anne Pedersen
What is Tourette syndrome?
ePosters
You will find below a digital version of the posters presented during the 2 poster rounds, –Friday 10 & Saturday 11 June–, as well as posters that were submitted by authors assigned an oral presentation (titles sorted in alphabetical order).
Click on "more info" to view the original abstract, contact the authors and view any additional elements they might have shared.
scroll inside this tab ↓
A double-blind, randomized, placebo-controlled crossover trial of medical cannabis in adults with Tourette syndrome
Abi-Jaoude Elia
more info
Artificial intelligence as an avenue for research and clinical work related to tic disorders
Szejko Natalia
more info
Brain networks associated with disruptive behavior in children with Tourette syndrome
Morand-Beaulieu Simon
more info
Clinical characteristics in mass social media-induced illness with functional Tourette-like behavior compared to Tourette syndrome
Fremer Carolin
more info
ENIGMA-TS: A worldwide platform for collaboration on the study of Tourette Syndrome genetics and neuroimaging
Paschou Peristera
more info
Early Development Difficulties as Predictors for Tic and Comorbid Severity, an EMTICS Study
Steinberg Tamar
more info
Further characterisation of the rat model of Tourette-related striatal disinhibition in vivo electrophysiological and behavioural studies
Loayza Joanna
more info
Mass social media-induced illness presenting with Tourette-like behavior impact of unconscious intrapsychic conflicts, structural deficits, and maintaining factors
Fremer Carolin
more info
Moderating Role of Depression on the Association of Tic Severity with Functional Impairment in Children
Feldman Sadeh Dana
more info
Network localization of tics: Evidence from coordinate and lesion network mapping
Zouki Jade-Jocelyn
more info
Neural, physiological and behavioural correlates of empathy for pain in Tourette syndrome
Weiblen Ronja
more info
Predictors of response to behavioral therapy in children with Tourette syndrome – results of the machine learning study
Szejko Natalia
more info
Psychiatric comorbidities in patients with mass social media-induced illness presenting with Tourette-like behavior
Fremer Carolin
more info
Specific Features of Tics and Stereotypies Interview – Exploratory Study on a Semi-Structured Interview to establish the differential diagnosis between tics and stereotypies
Nobre Soraia Carioca
more info
Therapist-guided exposure and response prevention treatment for adults with TS/CTD delivered via internet-(TICNET) a pilot trial
Ivanova Ekaterina
more info
Tourette Syndrome and rage attacks in children and adolescents. A longitudinal study
Cintin Ida
more info
Book of abstracts
Although our previous –virtual– meeting only took place 9 months prior to the Lausanne conference, one thing is certain; researchers around the world have been working tirelessly, submitting large numbers of excellent abstracts. We accepted 38 abstracts back in October 2021 and 48 last June in Lausanne.
Thank you all for your contribution and for keeping the collaborative spirit in top shape! 🚀
From Calgary to Melbourne...
Australia, Canada, Denmark, Germany, Israel, Italy, Norway, Poland, Portugal, Sweden, UK, USA
eGoodies
Courtesy of great guest speakers and trainers; we made available for a limited period of time the PDFs of their presentations. A special thank you to all those who shared their valuable work with the community!
From 1st November 2023, following the launching of the members account feature–, active ESSTS members will have the opportunity to access the files below from their respective member area once logged in.
Clinical guidelines
European clinical guidelines for Tourette syndrome and other tic disorders – version 2.0. Part II: psychological interventions
ESSTS collaborators
Digital tools
Development of a Self-help Digital Intervention for Young People with TS
Camila Babbage
Media guidelines
Guidelines for engaging with the media as a person with Tourette Syndrome (multilingual)
Seonaid Anderson
Poster
There is nothing Tourettic about the New York City subways” - representation of tics and Tourette syndrome in literature, cinema, and theatre
Natalia Szejko
Poster
CANNA-TICS Efficacy and Safety of Nabiximols in the Treatment of Adults with Chronic Tic Disorders
Kirsten R. Müller Vahl
Research paper
Stop that! It’s not Tourette’s but a new type of mass sociogenic illness
Kirsten R. Müller Vahl
Controversy & poll
Are functional tics easy to diagnose?
As promised when we first introduced controversy discussions followed by live polling during the Hannover meeting in 2019, it was indeed only the beginning!
This year, 2 esteemed colleagues from the University of Calgary, Tamara Pringsheim and Davide Martino took the stage and debated on a genuinely controversial topic; are functional tics easy to diagnose?
As you can see from the results...no landslide victory for either debater, yet Tamara's smile says it all! 💪
Both speakers have made their presentations available online; scroll to view them on the following section.
click for pop up
YES!
Programme
scroll inside this tab ↓
Thursday, 9 June 2022
Workshops
10.00-13.00 (parallel session)
Trainers:
Workshops
10.00-13.00 (parallel session)
II. Behavioural therapy for tic disorders:
"Tic treatment – Learn how to become a tic therapist or enhance your skills."
Workshop in English for beginner participants.
(view programme)
"Tic treatment – Learn how to become a tic therapist or enhance your skills."
Workshop in English for beginner participants.
(view programme)
Trainers:
Workshops
14.00-17.00 (parallel session)
III. Behavioural therapy for tic disorders:
"Exciting advances in Group treatment for Tics and Tourette syndrome."
Workshop in English for advanced participants.
(view programme)
"Exciting advances in Group treatment for Tics and Tourette syndrome."
Workshop in English for advanced participants.
(view programme)
Trainers:
Guest speakers (in order of appearance):
Judith Nissen, Eve Mc Allister, Nimmi Parikh, Annet Heijerman-Holtgrefe, Sharon Zimmerman Brenner, Noa Benaroya-Milshtein, Dana Feldman Sadeh
Dedicated to the memory of Kieron O'Connor
13.00-17.00 (parallel session)
18.00-19.00
I. Opening ceremony and lecture:
"Functional, Tourette-like behaviours; an evolving landscape"
"Functional, Tourette-like behaviours; an evolving landscape"
Speaker:
II. Apéritif time, getting together again!
III. Projection of film-documentary "Tics", by Thomas Oswald with the collaboration of Prof. Dr. Münchau and the neurologist & psychiatrist Dr. Daniel Alvarez-Fischer.
Friday, 10 June 2022
Pack your running shoes!
07.00
Morning run tradition continues, route TBA*
More info by our Chief Track & Field Officer:
*Weather & participation permitting, we shall repeat the run on Saturday 11 June.
Brain stimulation sessions
10.30-11.15
Podium discussion including discussion with the audience
moderated by Kirsten R. Müller-Vahl
Participants:
Juan Carlos Baldermann
11.15-11.45
Coffee break
11.45-12.15
Ecopipam in Children and Adolescents with Tourette Syndrome: Results from a Randomized, Double-Blind, Placebo-Controlled Phase 2b Study
Speaker:
13.00-14.00
Lunch break
13.00-14.00 (parallel session)
ENIGMA-TS Working Group meeting
Confirm attendance
Confirm attendance
(at “Pavillon Ouest”, adjacent to main building)
Coordinator:
Society and TS session
14.00-14.45
Ticking the wrong box –a global look at why we don't know what works in tic education and how we can find out.
Speaker:
moderated by Andrea Cavanna
History of TS session
14.45-15.30
Georges Gilles de la Tourette, the man behind the name.
Speaker:
moderated by Andreas Hartmann
15.30-16.15
Neural mechanisms of cognitive behavioral treatment in the framework of perception-action integration
Speaker:
moderated by Andreas Hartmann
16.15-16.45
Coffee break
16.45-18.30
moderated by Natalia Szejko & Andreas Hartmann
18.30-19.00
General assembly meeting
Saturday, 11 June 2022
Comorbidities
09.00-09.45
Update of guidelines for the treatment of OCD and OCD with GTS including PANDAS
Speaker:
Comorbidities
09.45-10.30
Podium discussion including discussion with the audience
moderated by Kerstin von Plessen
Participants:
11.15-11.45
Coffee break
11.45-12.30
Are functional tics easy to diagnose?"
Controversy discussion, followed by a poll.
moderated by Andrea Cavanna
Arguing yes:
Arguing no:
12.30-13.30
Lunch break
14.30-16.15
moderated by Natalia Szejko & Andreas Hartmann
16.15-16.30
Coffee break
17.30
Closing ceremony, best poster & best oral presentation prizes, Professor Mary Robertson award.
click!
scroll ↓ & click on photos for gallery view
scroll ↓ & click on photos for gallery view
Patient association meeting-TTAG's virtual session
Meet some of TTAG's board of directors and global patient association representatives: Argentina, Belgium, Italy (Tourette Italia), Mexico, New Zealand, Portugal, Spain, United Kingdom, USA-New Jersey.
Congratulations!
Jana and Natalia, you are coming to Lausanne next year!
Jana and Natalia, you are coming to Lausanne next year!
Recordings
If you were unable to attend, or would simply like to ... 📺 binge-watch these great presentations again..
The majority of the session recordings are now available and will remain online for at least 3 months after the completion of the Conference.
Welcome message by the ESSTS Board
Welcome to the 13th European Conference on Tourette Syndrome & Tic Disorders!
Available material:
No items found.
Plenary session on behavioural interventions for tics
Programme
Presentation of results of a randomized observer blind clinical trial to demonstrate the efficacy and safety of internet-delivered behavioural treatment for adults with tic disorders (ONLINE-TICS)
Therapist-Supported Online Remote Behavioural Intervention for Tics (ORBIT) in Children and Adolescents: A Single-Blind Randomised Controlled Trial
Development of a Self-help Digital Intervention for Young People with Tourette Syndrome
Applying an established Exposure Response Prevention protocol for Young People with Tourette’s syndrome in an intensive, group format: a UK feasibility study.
Available material:
No items found.
Plenary session on functional, “Tourette-like” behaviours exacerbated by COVID-19 pandemic, Part I
Programme
Compilation of FTB patients' clips diffused over social networks
Prepared by Natalia Szejko
ESSTS survey results "Evaluating frequency and clinical variability of functional tics and Tourette-like behaviours in Europe and all around the globe"
Presented by Natalia Szejko
Available material:
ESSTS survey: functional tic-like behaviours across the globe 2021
ESSTS collaborators
File available only for limited time
Plenary session on functional, “Tourette-like” behaviours exacerbated by COVID-19 pandemic, Part II
Programme
Case reports and discussion about underlying pathophysiology
Tamara Pringsheim & Davide Martino (CANADA)
- Rapid onset of functional tic like behaviours in adults during the COVID-19 pandemic
Seonaid Anderson (BELGIUM) (article)
- Tics on TV - Tourette syndrome and the media: lived experiences
- Functional Presentations in a Tic Disorder Clinic
Morvwen Duncan (UK)
- Mixed methods follow-up of children and young people following a diagnosis of functional tics: a prospective study
Tammy Hedderly (UK)
- Atypical tic-like presentations during the COVID19 pandemic
Nanette Mol Debes (DENMARK)
- Functional tics – experiences from Denmark
Peter Nagy (HUNGARY)
- Atypical Tic Cases
Theresa Paulus (GERMANY)
- Pandemic tic-like behaviours following social media consumption
Kirsten R. Müller-Vahl (GERMANY)
- Stop that! It’s not Tourette’s but a new type of masssociogenic illness
Available material:
Guidelines for engaging with the media as a person with Tourette Syndrome (multilingual)
Seonaid Anderson
File available only for limited time
Functional Presentations in a Tic Disorder Clinic
Priya Chakraborty
File available only for limited time
Stop that! It’s not Tourette’s but a new type of mass sociogenic illness
Kirsten R. Müller Vahl
File available only for limited time
Cannabis-based treatment in Tourette-Syndrome
Results of the randomized double-blind placebo-controlled trial to demonstrate the efficacy and safety of nabiximols (Sativex®) in the treatment of adults with chronic tic disorders (CANNA-TICS)
Available material:
CANNA-TICS Efficacy and Safety of Nabiximols in the Treatment of Adults with Chronic Tic Disorders
Kirsten R. Müller Vahl
File available only for limited time
Epidemiological studies in Tourette syndrome
Available material:
Epidemiological studies in TS-Karolinska
Lorena Fernández de la Cruz
File available only for limited time
TS and transport accidents 2021
Lorena Fernández de la Cruz
File available only for limited time
TS and driving experiences survey 2021
Lorena Fernández de la Cruz
File available only for limited time
EMTICS: Results from the large European Multicentre Tics in Children Study
Available material:
No items found.
Best papers on tics and TS 2020
Available material:
No items found.
Oral presentations of selected abstracts, Session I
Programme
Essing Jana (🏆 Best oral presentation)
- Premonitory urges reconsidered: urge location corresponds to tic location in patients with primary tic disorders
- The relationship between premonitory urges and tics, comorbidities, quality of life, and treatment
- Inter-individual differences in urge-tic associations in Tourette syndrome
- Detecting the functional anatomy of the urge-to-blink
- Somatosensory perception-action binding in Tourette syndrome
-Brain mechanisms of cognitive control in youth with Tourette syndrome and attention deficit hyperactivity disorder: an EEG study
-Objective quantification of tic expression in Tourette syndrome patients
Available material:
Oral presentations of selected abstracts, Session II
Programme
Szejko Natalia (🏆 Best ePoster)
- There is nothing Tourettic about the New York City subways” - representation of tics and Tourette syndrome in literature, cinema, and theatre
- Sex Differences in Tourette Syndrome
- Pain and Pain Management in Tics and Tourette Syndrome
- Tics and sleep: Qualitative insights from parents of children with Tourette syndrome
- An innovative person-centred research approach for Tourette’s
-Self-injurious behaviour in patients with chronic tic disorders – new insights and preliminary validation of the self-injurious behaviour scale (SIBS)
Available material:
There is nothing Tourettic about the New York City subways” - representation of tics and Tourette syndrome in literature, cinema, and theatre
Natalia Szejko
File available only for limited time
Self-Injurious Behaviour in Patients with Chronic Tic Disorders
Natalia Szejko
File available only for limited time
Behavioural Therapy workshop for beginner participants
An introduction to behavioural therapy for therapists interested in treating patients with tic disorders. The workshop includes a brief introduction to tic disorders and a step-by-stepin struction to the currently recommended evidence-based behavioural treatments: habit reversal training (HRT) and exposure and response prevention (ERP). Presenters are Dr. Ewgeni Jakubovski from Hannover Medical School, Germany, and PhD candidate Per Andrén from Karolinska Institutet, Sweden.
Programme
- Opening message by the board
- Summary of the 2021 ESSTS guidelines for psychological interventions (Ewgeni Jakubovski & Per Andrén)
- Psychoeducation Ewgeni Jakubovski
- Habit reversal training (HRT) / Comprehensive behavioural intervention for tics (CBIT) Ewgeni Jakubovski
- Exposure and response prevention (ERP) Per Andrén
Available material:
European clinical guidelines for Tourette syndrome and other tic disorders – version 2.0. Part II: psychological interventions
ESSTS collaborators
File available only for limited time
Behavioural Therapy workshop for advanced participants
Due to the sensitive nature of the clinical material presented in this workshop, the recording of the session will not be made available online.
Do not hesitate to get directly in touch with the trainers to request more information.
(Alphabetical order)
Tara Murphy (UK), Charlotte Sanderson (UK), Zsanett Tárnok (Hungary), Jolande van de Griendt and Cara Verdellen (The Netherlands)
Programme
- Opening by the board & in memoriam of Kieron O’Connor
- Comorbidities/ complex cases:
• Introduction – Charlotte Sanderson
• ADHD – Zsanett Tárnok
• OCD – Jolande van de Griendt
• ASD – Charlotte Sanderson & Tara Murphy
- Functional Tics:
• Diagnostics – Cara Verdellen
• Group Work - Tara Murphy
• Treatment by hypnosis - Cara Verdellen
• Treatment by catalepsy - Jolande van de Griendt
Available material:
Attention Deficit Hyperactivity Disorder and Tourette syndrome
Zsanett Tárnok
File available only for limited time
Comorbidities-complex cases; Obsessive compulsive disorder & Catalepsy
Jolande van de Griendt
File available only for limited time
Functional Tics; Introduction & diagnostics and Hypnosis
Cara Verdellen
File available only for limited time
Tics and Tourette Across the Globe (TTAG)
Patient associations session
Tics and Tourette Across the Globe (TTAG) is an umbrella association representing Tic and Tourette Syndrome advocacy groups across the globe, thus creating a united voice for those affected by this neurodevelopmental disorder.
Advocates, clinicians and scientists across the world collaborate to benefit those affected by Tourette Syndrome or tic disorders.
Get in touch with TTAG:
Email, Facebook, Twitter, Instagram, LinkedIn, YouTube, GoFundMe
Available material:
ePosters
A loud 📢 thank you to all the authors who shared with us their hard work and exceeded our conservative expectations of abstract submissions this virtual year!
You will find below a comprehensive list of the Conference ePosters (titles in alphabetical order).
Click on "more info" to view the supporting material (videos & articles) that some of the authors have provided.
scroll inside this tab ↓
A question of information mismatch: The effect of ADHD stimulant medications on Tourette's syndrome
Hisham Idura N.
more info
CANNA-TICS Efficacy and Safety of Nabiximols in the Treatment of Adults with Chronic Tic Disorders
Haas Martina
more info
Candidate Genes and Pathways Associated with Gilles de la Tourette syndrome — Where are we?
Levy Amanda
more info
Characteristics of tics in follow-up study of community-based high risk cohort of 2511 children
Szejko Natalia
more info
Contextualising Compulsive Acts: The value of studying lived experiences in everyday spaces.
Beljaars Diana
more info
Contribution of rare and non-coding genetic variants to Gilles de la Tourette syndrome
Borczyk Malgorzata
more info
EWAS of monozygotic twins implicate a role of mTOR pathway in pathogenesis of tic spectrum disorder
Hildonen Mathis
more info
Elevated Expression of SLC6A4 Encoding the Serotonin Transporter (SERT) in Gilles de la Tourette Syndrome
Levy Amanda
more info
Fine motor skills in children with Tourette’s Syndrome and their unaffected siblings
Boeg Tygesen Marie Louise
more info
Mycoplasma pneumoniae IgG positivity is associated with tic severity in chronic tic disorders
Bond Molly & Schnell Jaana
more info
Questioning the definition of Tourette syndrome – evidence from machine learning
Paulus Theresa
more info
Reduction of tics after CBIT is not associated with change in EEG alpha coherence during a Go/No-Go task in children with Tourette syndrome
Sukhodolsky Denis
more info
The severity of tics in patients with Gilles de la Tourette syndrome and comorbid Autism Spectrum Disorder
Kaczyńska Justyna
more info
There is nothing Tourettic about the New York City subways-representation of tics and Tourette syndrome in literature, cinema, and theatre
Szejko Natalia
more info
Premonitory urges reconsidered: urge location corresponds to tic location in patients with primary tic disorders
Essing Jana
more info
Self-Injurious Behaviour in Patients with Chronic Tic Disorders – new Insights and preliminary Validation of the Self-injurious Behaviour Scale (SIBS)
Szejko Natalia
more info
Programme
- Welcome online! Introduction by ESSTS Chair, Kirsten Müller-Vahl and presentation of the new Board
- Interview with James Leckman (30 min)
- Update on immunology in Tourette Syndrome/tics, by Davide Martino (20 min)
- Update on Behavioural Therapy in Tourette Syndrome by Per Andrén (20 min)
- Best papers of 2019 by Kevin Black (40 min)
- Live Q&A session with the Davide Martino (moderator: Nanette Mol Debes) & Per Andrén (moderator: Cara Verdellen)
Invited speakers
Behavioural therapy goodie
BT updates, a summary of treatment guidelines and new studies on BT for Tourette Syndrome & chronic tic disorders
Clinical psychologist and PhD student at Karolinska Institutet Per Andrén, has kindly made available to our attendees and now to all interested parties the slides of his presentation. Feel free to download!
Watch the recording
Did you miss it? Do you miss it? Off we go! 😎
A special welcome...
In this video, invited guitarist Michael Seubert is trying to keep-up with Kirsten's superior technique at the opening ceremony!
The unstoppable Mary Robertson greets ESSTS from mid-Atlantic!
Awards
This year, for the first time, the audience e-voted live for the awards.
Professor Mary Robertson Award for Research Contribution 2022
Per Andrén
Clinical and cost-effectiveness of Internet-delivered behaviour therapy for children and adolescents with Tourette syndrome: Protocol for a single-blind randomised controlled trial in Sweden
Best oral presentation
1st prize
Fotis Tsetsos
Genome-wide association study of Tourette investigates the genetic determinants of Tourette and implicates neuronal and synaptic processes
2nd prize
Maria Hadji-Michael
Alexithymia and interoception in children with Tourette syndrome: A clinical audit
3rd prize
Martina Haas
YGTSS: A critical look at the psychometric quality of the gold standard based on EMTICS data
Best poster presentation
1st prize
Ewgeni Jakubovski
ABX-1431, A First-in-Class Endocannabinoid Modulator, Improves Tics in Adult Patients with Tourette Syndrome
2nd prize
Laura Beljaars
ESSTS Patient Groups: The whole is greater than the sum of its parts
3rd prize
Mayaan Halevi
“Tic Attacks” in Tourette Syndrome
Yarisa Nicola Piris
Sexuality and Tourette Syndrome: The impact of sexual self-esteem on sexual practices. Pilot study.
Chloe Taylor
A case study of a child with complex TS treated with intensive CBIT and close school liaison
AWARDS
Per ANDREN
Mary Robertson Award
Clinical and cost-effectiveness of Internet-delivered behaviour therapy for children and adolescents with Tourette syndrome: Protocol for a single-blind randomised controlled trial in Sweden
Fotis tsetsos
Best oral presentation
1st prize
Genome-wide association study of Tourette investigates the genetic determinants of Tourette and implicates neuronal and synaptic processes
Maria HADJI-MICHAEl
Best oral presentation
2nd prize
Alexithymia and interoception in children with Tourette syndrome: A clinical audit
Martina HAAS
Best oral presentation
3rd prize
YGTSS: A critical look at the psychometric quality of the gold standard based on EMTICS data
Ewgeni JAKUBOVSKI
Best e-poster presentation
1st prize
ABX-1431, A First-in-Class Endocannabinoid Modulator, Improves Tics in Adult Patients with Tourette Syndrome
Laura BELJAARS
Best e-poster presentation
2nd prize
ESSTS Patient Groups: The whole is greater than the sum of its parts
Mayaan HALEVI
Best e-poster presentation
3rd prize
“Tic Attacks” in Tourette Syndrome
Yarisa Nicola PIRIS
Best e-poster presentation
3rd prize
Sexuality and Tourette Syndrome: The impact of sexual self-esteem on sexual practices. Pilot study.
Chloe TAYLOR
Best e-poster presentation
3rd prize
A case study of a child with complex TS treated with intensive CBIT and close school liaison
Controversy & poll
...to "T" or not to "T"? Is it time to rename Tourette syndrome?
This year, we introduced live polling for the ePoster and oral presentation awards, but also for our first (though certainly not last!) controversy, titled:
“Is it time to rename Tourette syndrome?”
See the final results on the following chart.
In Jeremy Stern’s immortal and spontaneous comment, "it was Brexit all over again”…😉
Of note, the discussion with the audience was lively and could easily have gone on for much longer. To be continued in Lausanne on this and other topics!
click for pop up
Book of abstracts
Whether you have already retrieved you book of abstracts copy at the Meeting, or you would like to discover this year's programme and submitted abstracts, you may download the full content in this section.
Following CPH 2018 tradition, we have prepared the Hannover 2019 Lookbook, in an effort to capture the beautiful spirit of our society throughout its annual meetings.
Keep calm, have fun and conference on!
Awards
Professor Mary Robertson Award for Research Contribution 2022
Paula Viefhaus
Efficacy of a Resource Activation Treatment in Children with Chronic Tic Disorders – A Within-Subject Analysis
ESSTS Lifetime achievement award
Anne Gersdorff Korsgaard
Efficacy of a Resource Activation Treatment in Children with Chronic Tic Disorders – A Within-Subject Analysis
Best oral presentation
Leanne Hockey
Attention and inhibition in Tourette’s Syndrome
Best poster presentation
Juan Carlos Baldermann
Stimulation-dependent functional connectivity of effective deep brain stimulation for Tourette Syndrome
AWARDS
Paula Viefhaus
Mary Robertson Award
Efficacy of a Resource Activation Treatment in Children with Chronic Tic Disorders – A Within-Subject Analysis
Leanne Hockey
Best oral presentation
Attention and inhibition in Tourette’s Syndrome
Juan Carlos Baldermann
Best poster presentation
Stimulation-dependent functional connectivity of effective deep brain stimulation for Tourette Syndrome
Anne Gersdorff Korsgaard
ESSTS Lifetime achievement award
Book of abstracts
On stage & backstage
scroll ↓ & click on photos for gallery view
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