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Brussels, Belgium

15th European Conference on Tourette Syndrome & Tic Disorders

ePOSTERS

“For the love of God just refer me” - A coproduced qualitative project into the struggles of accessing healthcare services for those living with Tourette Syndrome in the UK

Oral presentation

Babbage Camilla

University of Nottingham, MindTech, Institute of Mental Health
Co-author(s)
Dr Bethan Davies, Dr Jennifer Salvage, Paul Stevenson, Emma McNally, Marie Ralph, Seonaid Anderson, Daniel Jones, Dr Maddie Groom
Supported by:
Association Française du Syndrome de Gilles de LaTourette
Supporting video available
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Recommended links:

The Institute of Mental Health

https://vimeo.com/796243533

Please share the animation using the hashtag #TourettesHearUs

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Conference ePosters:

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An exploration of attention deficit hyperactivity disorder in young people presenting with functional tic-like behaviours.

Oral presentation

Pronin Savva

more info

Brain morphological changes in patients with Tourette syndrome: a voxel- and surface-based morphometry multi-site stud

Oral presentation

Schmitt Simon

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Changes in Tic suppression ability and urge intensity over a 10-week Habit Reversal Training in Patients with Tourette syndrome.

Oral presentation

Eberhard Antonia-Leonie

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Characterising young people with functional tic-like behaviours (FTLB) in the context of functional symptoms (FS): preliminary data analysis

Oral presentation

Frankland Miles

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Clarifying the Differences between Patients with Organic Tics and Functional Tic-like Behaviors

Oral presentation

Andersen Kaja

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Clinician network as a strategy for building and maintaining competence on Tourette Syndrome and Habit Reversal Training in the specialist health services

Oral presentation

Pedersen Kari Anne

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Correlation of comorbidities and variability of tics in children with Tourette syndrome and chronic tic disorder

Oral presentation

Andersen Kaja

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Design of a Phase 3 Maintenance-of-Effect Trial of Ecopipam in Tourette Syndrome

Oral presentation

Atkinson Sarah

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Development in pharmacological treatment of children with chronic tic disorders during the last two decades in Denmark

Oral presentation

Skov Liselotte

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Different autoantibody concentrations in serum and CSF in Gilles de la Tourette syndrome

Oral presentation

Sühs Kurt-Wolfram

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Differential diagnosis of autism-spectrum-disorder (ASD) in adults

Oral presentation

Alvarez-Fischer Daniel

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Efficacy, Safety, and Tolerability of Ecopipam in Tourette Syndrome with Psychiatric Comorbidities

Oral presentation

Atkinson Sarah

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Evaluation of diagnostic instruments for Autism-spectrum-disorder (ASD) in adults

Oral presentation

Alvarez-Fischer Daniel

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Experiences of self-identification, diagnosis and support for adults seeking a late diagnosis of tic disorders in the United Kingdom

Oral presentation

Phoenix-Kane Danni

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Exploring Clinical Pathways for Tics and Tourette Syndrome Perspectives from Healthcare Professionals and Patients

Oral presentation

Johanna Marie Luise Fijn van Draat

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Exploring Services for Tics in Children and Young People in England

Oral presentation

Jeayes Alexia

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Free or not free? – this is the question. Control over tics and free will in patients with Gilles de la Tourette syndrome

Oral presentation

Szejko Natalia

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Functional Motor Disorders in pediatrics: clinical motor correlates and neuropsychiatric profiles

Oral presentation

Baglioni Valentina

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Functional Tic-like behaviours: A Comparison with Tourette syndrome and Functional Symptoms in Children and Adolescents

Oral presentation

Smith Abbie

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Identifying Autism Spectrum Disorder (ASD) in Young People Presenting with Functional Tic-Like Behaviours

Oral presentation

Duncan Morvwen

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Influence of persisting primitive reflexes on the expression or triggering of tic disorders or Tourette

Oral presentation

Meyers Ralph

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Lessons learned from randomized-controlled studies in patients with Tourette syndrome and chronic tic disorders

Oral presentation

Klages Carolin

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Letting Tourette's be: The importance of understanding lived experience in research and the clinic

Oral presentation

Beljaars Diana

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Literature review and clinical perspective in the management of functional tic-like behaviours within a tertiary children’s hospital in England

Oral presentation

Damodaran Laavanya

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Managing functional tic like behaviours: the development of an advice sheet for use in schools

Oral presentation

Owen Tamsin

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Microaggressions Experienced by Emerging Adults (16-25years old) with Tourette Syndrome

Oral presentation

Beaulieu Coralie, Gagnon Méliza

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Non-just-right experiences are more closely related to OCD than tics in Tourette patients

Oral presentation

Cramer Catharina

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Online Open-Ended Training Group "Parents Living Well with Tics"

Oral presentation

Feldman-Sadeh Dana

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Placebo Effect in Randomized Clinical Trials of Patients with Tic Disorders–Results of Systematic Review and Meta-analysis

Oral presentation

Szejko Natalia

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Premonitory urge and tic severity, comorbidities, and quality of life in chronic tic disorders

Oral presentation

Szejko Natalia

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Promising results on a clinical trial to explore the safety and efficacy of Sepranolone in pediatric and adult patients with Tourette syndrome

Oral presentation

Biernat Heidi

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Proposed Cut-off Values for the Multidimensional Anxiety Scale for Children (MASC-2), Children’s Depression Inventory (CDI-2) and Conners 3 Parent Assessment Report (Conners 3) in Children with Tic Disorders

Oral presentation

Szejko Natalia

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Representation of Gilles de la Tourette syndrome in visual art

Oral presentation

Szejko Natalia

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Revision of the Rush Video-Based Tic Rating Scale

Oral presentation

Fremer Carolin

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Science-society rifts on tics, compulsions, and Tourette’s: Perspectives of a panel of Tourettic persons and Tourette’s researchers

Oral presentation

Beljaars Diana

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Somatosensory temporal discrimination in adolescents with Tourette Syndrome: a pilot study

Oral presentation

Baglioni Valentina

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Surveillance study of a UK cohort of adolescents presenting with functional tic-like behaviours (FTLB)

Oral presentation

Ducroizet Alexandra

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The Calgary and Paris (CAP) Adult Tic Registry: Project description and initial analyses of sex differences in tic phenomenology

Oral presentation

Nilles Christelle

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The Tourette OCD Alberta Network: Development of an Educational Outreach Program for Schools

Oral presentation

Fletcher Julian

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The Tourette OCD Alberta Network: Development of an Online Parental Peer Discussion Group

Oral presentation

Fletcher Julian

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The retrospective analysis of outcomes of pediatric patients with functional tic-like behaviors – What lessons have we learnt?

Oral presentation

Tomczak Kinga

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Tic Surf School: An Urge Acceptance Behavioural Intervention

Oral presentation

Maxwell Amanda

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Tics in Children and Adolescents in Primary Care

Oral presentation

Peschardt Sofie Bencke

more info

“For the love of God just refer me” - A coproduced qualitative project into the struggles of accessing healthcare services for those living with Tourette Syndrome in the UK

Oral presentation

Babbage Camilla

more info
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