Dear Tourette Community,
On behalf of the International Parkinson’s Disease and Movement Disorders Society Tic and Tourette Syndrome Study Group, we are requesting you complete this 10-minute survey describing your clinical practices with tic patients. Your input is crucial.
Practice variations continue to be quite wide and that many barriers in different clinical settings might negatively influence the adoption of the American Academy of Neurology and the European Society for the Study of Tourette Syndrome published guidelines.
The objectives of this survey are 1) to identify how clinical practices diverge from the existing AAN and ESSTS guidelines, and 2) to identify categories of barriers leading to these clinical care gaps.
There is a need to assess the degree that these clinical guidelines are being followed, contextualize them within diverse practices, and identify barriers encountered so that strategies can be developed to consistently achieve a standard of care.
We sincerely appreciate your time for this important study,
Jaclyn M. Martindale, Harini Sarva, Davide Martino, Donald L. Gilbert, Christos Ganos, Tamara Pringsheim, Kevin Black, and Irene A. Malaty on behalf of the Movement Disorder Society Tic and Tourette Study Group
This study is approved by the Wake Forest University Health Services Institutional Review Board IRB00091225
The Frontiers editorial office will be able to provide more information/answer any questions.
Discover the spectacular destination where we shall meet again next summer!
Invited speakers
Per Andrén
Kevin Black
James Leckman
Davide Martino
- Le relazioni si terranno in lingua inglese con traduzione simultanea in italiano
- Accreditamento ECM per medici, psicologi, infermieri
"A brilliant and empathetic comedy narrating the daily life of a boy with Tourette."
(See detailed programme below)
- Prof Andreas Hartmann, France
Neurologist, Department of Neurology, Hôpital de la Pitié-Salpêtrière, Paris, FR - Dr Christelle Nilles, France
Neurologist, Department of Neurology, Rothschild Foundation Hospital, Paris, FR
- Michele Dunlap, Germany
President & Acting Treasurer - Marla Shea, UK/USA
Secretary
- Christina Papakaliatis, Founder
-Healthcare professionals: a round table for discussion with the speakers will be held in the afternoon.
Online registration is mandatory to secure your participation.
- This event is strictly available to adults and minors aged 16-17 years old. Underaged attendees will not be permitted access.
- The seminar is offered for educational purposes; clinical consultations with any of the invited healthcare professionals will not be provided onsite.
- Only registered participants may attend the event. We will regrettably not be able to admit other non-registered visitors accompanying you.
- Tourette Greece
- TTAG
- ESSTS
- Assessment (including differential diagnosis)
- Natural course and prognosis
- Epidemiology
- Causes & mechanisms
- Q&A
- ADHD (Attention Deficit Hyperactivity Disorder)
- OCD (Obsessive-Compulsive Disorder)
- ASD (Autism Spectrum Disorder)
- Mood (anxiety & depression)
- Sleep
- Q&A
- Available treatments
- Clinical cases
- Comprehensive Q&A with the audience
- Tuesday, 28 January 2025: 18:00-20:00 GMT. Led by: Tara Murphy & Zsanett Tárnok
- Tuesday, 25 March 2025: 18:00-20:00 GMT. Led by: Jolande van de Griendt & Cara Verdellen
- Tuesday, 27 May 2025: 18:00-20:00 GMT. Led by: Virginie Czernecki & Katrin Woitecki
- Tuesday, 30 September 2025: 18:00-20:00 GMT. Led by Tara Murphy & Jolande van de Griendt
- Tuesday, 25 November 2025: 18:00-20:00 GMT. Led by: Cara Verdellen & Katrin Woitecki
Registration rate per online consultation (2 hours): €35.